CURING EZRA

Sunday, January 27, 2013

A Very Special Day

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Ezra had a very special day last week when he had the opportunity to visit the New York Hall of Science for an after-hours private tour. The...
2 comments:
Sunday, December 23, 2012

Day +222: And Then There Were None

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The transplant has failed. Ezra has only 1% donor cells left. There is nothing left to do except start the dismal process of talking to the ...
15 comments:
Thursday, December 13, 2012

Day +211: Hoping for a Hanukkah Miracle

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This past month has been spent waiting for the immunosuppressants to make their way out of Ezra's system so that we can test the donor c...
3 comments:
Thursday, November 15, 2012

Day +183: Things Fall Apart

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The latest chimerism studies show that Ezra's donor cells are back down to 3%.  The doctors had ordered a different type of chimerism te...
7 comments:
Tuesday, October 30, 2012

Safe and Sound

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Thank you to everyone for all the messages checking in. We are all fine. We miraculously have power, which is fantastic for many reasons, bu...
1 comment:
Saturday, October 13, 2012

Day +151: One Point Higher

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The latest chimerism results are in and the percentage of donor cells has increased from 5% to 6%. We are disappointed that the increase was...
4 comments:
Sunday, September 30, 2012

Day +137: Keep on Getting Stronger

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Ezra's counts have been starting to stabilize.  His platelets have started to hold without transfusions, and his neutrophils are just ab...
9 comments:
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About Me

Help4Ezra
Ezra Jordan Fineman (Ezra Aviel ben Hertzelia Shandel) is 5 years old. He loves basketball, music and space shuttles. He also has a rare primary immune deficiency called Hyper IgM Syndrome. Ezra will be undergoing a stem cell transplant in hopes of curing this condition. Please check here or on Facebook at https://www.facebook.com/Help4Ezra for updates as we go through the journey of curing Ezra.
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