Sunday, January 26, 2014

Days +151 to +157: Two Steps Forward, One Step Back

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This week we have been able to cross some things off the worry list while adding others. First, the mysterious rash has disappeared. We stop...
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Sunday, January 19, 2014

Days +144 to +150: The Good, the Bad, and the Ugly

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It has been a heck of a week.  Let's start with the good news. Ezra's liver numbers started to go down this week. They are still way...
2 comments:
Sunday, January 12, 2014

Days +139 to +143: Wait and See and Hope

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After an insanely long day at clinic, we don't have an answer as to what is going on with Ezra's liver, which is maybe a good thing ...
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Wednesday, January 8, 2014

Days +136 to +138: Update

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Thank you to all for your concern about Ezra. We really appreciate all the messages of support - they keep us going. After spending yesterda...
4 comments:
Sunday, January 5, 2014

Days +122 to +135: Dealing with the Costs and the Benefits

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For the past two weeks, we have been dealing with some of the downsides of Ezra's post-transplant treatment. First, last week his hemogl...
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Sunday, December 22, 2013

Days +111 to +121: How Far We've Come

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One year ago, we announced on this blog that Ezra's transplant had officially failed. We had just received the news that he had only 1% ...
6 comments:
Wednesday, December 11, 2013

Days +103 to +110: Good News!

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Today brought fantastic news: Ezra's T cells are 99% donor!!! And all other cell lines are 100%! We are beyond relieved and so thrilled!...
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