Sunday, February 23, 2014

Days +179 to +185: Six Months and the Journey Continues

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Today marks six months post Ezra's second transplant. We feel very grateful that Ezra is overall doing well, the donor cells have settle...
Sunday, February 16, 2014

Days +166 to +178: Pedaling Along

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We have the results back from the latest round of testing on Ezra's T cells. One T cell line went up, although not as much of a jump as ...
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Monday, February 3, 2014

Days +158 to +165: What Comes Next?

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Let's get the not great news out of the way. Two of Ezra's liver levels have basically stayed at the same high level this week, whil...
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Sunday, January 26, 2014

Days +151 to +157: Two Steps Forward, One Step Back

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This week we have been able to cross some things off the worry list while adding others. First, the mysterious rash has disappeared. We stop...
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Sunday, January 19, 2014

Days +144 to +150: The Good, the Bad, and the Ugly

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It has been a heck of a week.  Let's start with the good news. Ezra's liver numbers started to go down this week. They are still way...
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Sunday, January 12, 2014

Days +139 to +143: Wait and See and Hope

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After an insanely long day at clinic, we don't have an answer as to what is going on with Ezra's liver, which is maybe a good thing ...
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Wednesday, January 8, 2014

Days +136 to +138: Update

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Thank you to all for your concern about Ezra. We really appreciate all the messages of support - they keep us going. After spending yesterda...
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