Thursday, April 17, 2014

Days +228 to +238: A Better Week

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Overall, this past week has been a better one for Ezra. Instead of dropping again at the one week post-IVIG mark, his platelets actually inc...
2 comments:
Sunday, April 6, 2014

Days +218 to +227: Birthday Do-Over and The Latest

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Last Sunday, we had the joy of holding a "do over" party to celebrate Ezra's 5th birthday. We had a small grown ups only party...
4 comments:
Thursday, March 27, 2014

Days +210 to +217: Improving, But Not Out of the Woods Yet

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It has been an exhausting first week home. On the good news front, Ezra's hemoglobin has improved nicely. As of yesterday, it is actuall...
3 comments:
Wednesday, March 19, 2014

Days +207 to +209: We're Home!

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We're home, thank goodness! The doctors decided that Ezra is stable enough to continue his care outpatient and discharged him today. His...
6 comments:
Sunday, March 16, 2014

Days +203 to +206: Plan C

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Plan C has now begun. After more research and calls, Ezra's doctors have decided to try putting Ezra on an immunosuppressant instead of ...
1 comment:
Wednesday, March 12, 2014

Days +201 to +202: Feeling Better, But Counts Not Improving

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The past two days have been difficult. The doctors were concerned that Ezra could have sepsis, an infection of the blood that can be very da...
2 comments:
Monday, March 10, 2014

Days +198 to +200: Stable, but Suffering

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The treatment so far has managed to stabilize Ezra's counts. Hemoglobin and platelets are still low and not improving, but have remained...
3 comments: