CURING EZRA

Sunday, May 25, 2014

Days +270 to +277: In Love With a Big Blue Bear

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It was another frustrating medical week. On the plus side, Ezra avoided another round of high dose IVIG. At clinic on Tuesday, his platelet...
4 comments:
Sunday, May 18, 2014

Days + 263 to +269: Never a Straight Path

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After our positive update last week, we had another harsh reminder this week that we are not in the clear and this latest set back is not ye...
2 comments:
Sunday, May 11, 2014

Days +249 to +262: Laughing in the Rain

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Thankfully, things continue to head in positive direction for Ezra. His hemoglobin has been stable, and his platelets are slowly increasing....
5 comments:
Sunday, April 27, 2014

Days +239 to +248: Headed in the Right Direction

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We are happy to report that this past week was a good one! The doctors repeated the antibody tests last week. The good news is that Ezra is ...
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Thursday, April 17, 2014

Days +228 to +238: A Better Week

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Overall, this past week has been a better one for Ezra. Instead of dropping again at the one week post-IVIG mark, his platelets actually inc...
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Sunday, April 6, 2014

Days +218 to +227: Birthday Do-Over and The Latest

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Last Sunday, we had the joy of holding a "do over" party to celebrate Ezra's 5th birthday. We had a small grown ups only party...
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Thursday, March 27, 2014

Days +210 to +217: Improving, But Not Out of the Woods Yet

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It has been an exhausting first week home. On the good news front, Ezra's hemoglobin has improved nicely. As of yesterday, it is actuall...
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About Me

Help4Ezra
Ezra Jordan Fineman (Ezra Aviel ben Hertzelia Shandel) is 5 years old. He loves basketball, music and space shuttles. He also has a rare primary immune deficiency called Hyper IgM Syndrome. Ezra will be undergoing a stem cell transplant in hopes of curing this condition. Please check here or on Facebook at https://www.facebook.com/Help4Ezra for updates as we go through the journey of curing Ezra.
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