CURING EZRA

Friday, March 13, 2015

THE CURE

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The news we have been waiting for, praying for, and fighting for has arrived. Ezra has responded to the vaccine. His immune system did wha...
23 comments:
Sunday, March 1, 2015

One Part of the Cure

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We happily received some good news this week. The specific type of Hyper IgM Syndrome that Ezra has is called X-linked CD40 Ligand Deficienc...
2 comments:
Monday, February 2, 2015

Third Time's A Charm?

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Ezra received another vaccine shot on Friday. Now that he is on a lower dose of the immune suppressant, his doctor thought it was a good tim...
Sunday, January 4, 2015

Patience

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The past two weeks have been great fun for Ezra, and he has enjoyed the holidays and the new year celebrations. We don't have the best n...
Sunday, December 21, 2014

T It Up!

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Good news on the T cell front - Ezra's T cells have reached the normal range! We also received the results of the general function T cel...
5 comments:
Sunday, December 7, 2014

Living In Limbo, But It's Ok

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We had a chance to speak with Ezra's primary transplant doctor this week at clinic about the state of Ezra's immune system. As we wr...
1 comment:
Sunday, November 23, 2014

Trying To Be "Cautiously Optimistic"

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The last few weeks have been spent trying to assess the state of Ezra's immune system, but after all the testing, we are still left in a...
1 comment:
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About Me

Help4Ezra
Ezra Jordan Fineman (Ezra Aviel ben Hertzelia Shandel) is 5 years old. He loves basketball, music and space shuttles. He also has a rare primary immune deficiency called Hyper IgM Syndrome. Ezra will be undergoing a stem cell transplant in hopes of curing this condition. Please check here or on Facebook at https://www.facebook.com/Help4Ezra for updates as we go through the journey of curing Ezra.
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