CURING EZRA
Monday, June 22, 2015
Days of Wonder and Awe
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It has been a while since we shared a full update. The past two months since our last update have been full of miraculous new experiences an...
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Sunday, April 26, 2015
Spring Awakening
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It's been about 6 weeks since we found out that Ezra responded to vaccination and with that news, everything changed. It has been a whir...
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Friday, March 13, 2015
THE CURE
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The news we have been waiting for, praying for, and fighting for has arrived. Ezra has responded to the vaccine. His immune system did wha...
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Sunday, March 1, 2015
One Part of the Cure
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We happily received some good news this week. The specific type of Hyper IgM Syndrome that Ezra has is called X-linked CD40 Ligand Deficienc...
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Monday, February 2, 2015
Third Time's A Charm?
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Ezra received another vaccine shot on Friday. Now that he is on a lower dose of the immune suppressant, his doctor thought it was a good tim...
Sunday, January 4, 2015
Patience
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The past two weeks have been great fun for Ezra, and he has enjoyed the holidays and the new year celebrations. We don't have the best n...
Sunday, December 21, 2014
T It Up!
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Good news on the T cell front - Ezra's T cells have reached the normal range! We also received the results of the general function T cel...
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