Thankfully, things continue to head in positive direction for Ezra. His hemoglobin has been stable, and his platelets are slowly increasing. We found out that he is still positive for neutrophil antibodies, although the antibodies are now considered to be "weak." We are anxiously awaiting results of a re-check of the red blood cell antibodies. He was negative last time, but the doctors are keeping a close eye to make sure that the red blood cell antibodies do not re-surface as we wean the steroids.
We also re-tested his chimerism. The whole blood results show that he is still 100% donor. We are waiting for the cell line chimerism results. Assuming all is ok on that front, it is comforting to know that when the day comes that he is off steroids and the immunosuppressant, he will hopefully be back on track with building a healthy, new immune system. We have also thankfully been able to stay at twice a week clinic visits for the past two weeks, which makes a huge difference.
Ezra has been feeling good and loving being able to spend more time outside. We were out for a walk yesterday, and all of sudden the skies opened and we were caught in a downpour. Ezra thought this was hysterical, as we got soaking wet running back home. He could hardly breathe he was laughing so hard! It felt so good to feel so alive, to be away from the stale gray of the hospital, and to be able to laugh in the rain.
