Just six months ago, we received the miracle news that Ezra's new immune system, made possible by his miracle donor, had started to function. With that news, Ezra has been able to begin to live as a "normal" six year old, attending school and playing with friends - activities that were previously forbidden. Watching Ezra enter the world has been magical and miraculous.
None of this would have been possible without Ezra's donor. As those of you who have been with us on this journey know, there was a time when we thought Ezra would never have the chance to be cured because there was not a single donor among the 25 million donors worldwide who was a suitable match. It is our greatest hope that no other family has to go through the desperation we felt when the doctors told us that our son's chance for a cure depended on a donor we did not have.
To help achieve this goal, we will once again be forming Team Ezra sponsored by our synagogue Congregation Ahavat Achim for the Gift of Life Walk for Life. This year's 5K walk/run will be held on Sunday, October 25 in Saddle River Park in Paramus, NJ. It is a family-fun, beautiful event that includes a donor-recipient meeting. Funds raised will go toward adding donors to the registry. For every $60 raised, one donor is added to the registry with the potential of saving a life.
We would love for you all to join us! Ezra is very excited to see Team Ezra in action once again!
You can join the team and set up your own fundraising page here:
Or please consider donating to our family team here: http://support.giftoflife.org/goto/ezra
We are forever grateful to all of you for your unending support of our family over the past 6 years.
Love,
Robin, Evan and Ezra
