The last two days have been great. Ezra is doing really well. He is still energetic and playful. And amazingly still eating well and avoiding TPN. The only problem is that we found out that he still has too many T cells left. The chemo should have wiped out his T cells, but there are still some floating around. Ezra's T cells need to be gone in order for the new donor cells to grow and take over. The doctors are running more tests to see if the T cells are Ezra's or some residual T cells that came with the cord blood unit. Then we'll wait a couple of days to see if the counts go down. If the T-cells are his and they don't go down, Ezra may need more chemo. Obviously, we really want to avoid putting his little body through more chemo. So please pray that those T cells do what they are supposed to do and go away. We always knew Ezra was strong, but this is an instance where we need his body to give up a little and wave that white (blood cell) flag of defeat.
We've been completely spoiled by all the delicious food coming our way from everyone who signed up to feed us. We can't thank you all enough for your generosity and thoughtfulness.
Special treat for Mama tonight: Daddy went to the RMH this evening and they offered him free Yankees tickets to tonight's game. He correctly declined, telling them he would no longer be a husband if he accepted. Instead of the tickets, they told him that Macys was holding a special event there and he could pick up a new pair of shoes for Mama. Sweet! Now, that's a good husband! Mama is happy with her new dress shoes...now just need a chance to wear them.
Here are some pics of Ezra and his favorite things - playing guitar and space shuttles.
May the old T-cells vanish and the new cells grow quickly......and may you enjoy wearing your new shoes somewhere wonderful with your husband and healthy son :).
ReplyDeleteI somehow missed this exciting news last week. So thrilled for you, we will definitely come by Sloan over the next few weeks to donate. Best wishes for a full recovery for Ezra - Shira (Match for Maxine team)
ReplyDeleteYou know the saying "time heals all wounds?" Well, so does a new pair of shoes! Enjoy, Robin.
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