Monday, May 14, 2012

Days Negative 4 and 3: A Little Better

We started to see a little bit of improvement in Ezra over the past 2 days. He was the best he has been this morning when he spent most of the morning jamming on his guitar and singing with his music therapists. Then we started the last of his chemotherapy drugs this afternoon. This drug can have serious side effects, so they gave him a ton of pre-medications, which knocked him out for most of the rest of the day. The nurses have been in his room the majority of the day, closely monitoring him. So far he's handling it well. It is run over a 12 hour period, so it won't be done until the middle of the night and then we start it again tomorrow. So two days of extra anxiety.

Tomorrow is the last day of chemotherapy and then a day of rest before transplant day on Thursday.  His counts are dropping, as they should be, to make room for his new cells. He will start receiving blood and platelet transfusions soon.

And now your entertainment news: celebrity sightings in Room 935 today. Mayim Bialik came to visit. Mayim got to know Ezra last year when she joined up with Gift of Life to encourage people to join the bone marrow donor registry in hopes of finding miracle matches for Ezra and other patients in need. She has been a wonderful friend over the past year and we are grateful for her support and all she has done for Gift of Life. Sorry, no pictures: Ezra was wiped out when she visited, although they did get to discuss Ezra's new favorite movie - Mary Poppins (courtesy of Grandma and Grandpa) - before he fell asleep. We were touched that she visited.


15 comments:

  1. We are glad that he is feeling a little better. You are all in our prayers. Love, Aunt Merle and Uncle Frank

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  2. Phew, some good news! Good to hear the little dude is feeling a bit better. Tell Robin to put on some lip gloss today, Clooney's up next.

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  3. Glad to wake up to see some positive developments. May the good news continue. Send our love to Ezra.

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  4. Sending hugs and kisses!!!! xoxoxoxoxo

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  5. So glad he's been doing a little better. Hope you guys were able to rest a little, too!

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  6. Been keeping up with your blog. So happy yesterday was a better day. Thinking of you!! Marisa

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  7. We are so glad that Ezra was feeling a little better.
    I mentioned his story to a new young girl that just started
    working at my physical therapy place.

    She was so touched by Ezra's story, that she decided to
    be a donor.

    We hope that in the near future this will just be a
    distant memory, as you watch your happy and healthy
    little boy running and playing with all his little friends.

    Much love, Michele, John and your Great Aunt Miriam

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  8. Our thoughts and prayers are with you!

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  9. The power of prayer and positive thinking gives us strength and healing, even if it's a little each day! I keep you all in my prayers daily.
    Ann

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  10. So glad to see that Ezra is doing a little better. Love the pic of him playing his guitar....Perhaps the next Jon Bon Jovi or Justin Beaver
    You are in my thoughts and prayers each day!
    Rona

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  11. We do not know you, but want you to know that Ezra is in our thoughts and prayers. We send you strength and positive thoughts of healing.

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  12. We will pray at the kotel for Ezra--all the best!
    Love, Jeff and Michelle

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  13. Dorothy and LennyMay 16, 2012 at 2:30 PM

    Our daughter Jennifer K, who graduated from Ramapo High School with you, told us of your son. We have put Ezra's name on our Shul's Mi Shebarach list. Our Rabbi will say a prayer for him until he is well. We wish him a Refuah Shlema and with Hashem's help he will be well very soon.

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  14. So glad to hear the last few days have been better, you're in our thoughts and prayers, God bless - Joe C.

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  15. We'll be thinking of you tomorrow and in the important days and weeks to come. Think white blood cells and hopefully he'll engraft faster

    Love,
    Marty and Betsy Sonnenblick

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