Saturday, June 9, 2012

Days +21 to +23: Good Days and Bad Days

Yesterday was a rough day for Ezra. He woke up vomiting, with a rash and in a lot of pain. No one was sure of the cause - maybe a reaction to medications, blood products or infection. Infection is the biggest worry. The longer Ezra remains without an immune system, the more susceptible he is to serious infection. We ended up having to give him a drug to sedate him because he was in so much pain. It was hard to watch him experience so much pain. This morning he woke up and the rash was gone and he was back to his playful self. So far the tests for infection that have come back are negative and they have added an antihistamine around the clock in case his symptoms were an allergic reaction to a medication or blood product. The doctors are watching him closely.

There is still no progress with his neutrophils. They are nowhere to be seen. The doctors are saying that it is ok because cord blood can take so long to engraft, but that is no comfort on days like yesterday when everyone was fearing infection. The news cells need to grow and the sooner, the better.

Ezra is still doing plenty of playing, but he has been more tired lately. He is sleeping for bigger chunks of the day, leaving Mommy and Daddy to fight over who gets dibs on the iPad. His little body is dealing with a lot right now and we're happy for him to rest, but it's more fun when he wants to play.


5 comments:

  1. Keep writing. Even when it's hard. We are all listening and sending good vibes. We are all here for you. We are all praying for Ezra's body to be accepting and for the new cells to grow. We are all praying for a speedy and thorough healing so that the pain can be over and Ezra can play outside. Love love love

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  2. Hi Ezra, I was just thinking about you. So sorry that you've been having some rough days. I hope tomorrow I much better for you xoxoxo Jennifer Simicich

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  3. Good Morning!
    Sending positive vibes to Ezra, hoping you guys are hanging in there.

    :)

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  4. Sending lots of prayers always.

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  5. Praying for Ezra. Sending warm thoughts and wishes and filled with hope.

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