There has been no growth in Ezra's neutrophils since the small increase on Tuesday. The level hasn't decreased, but it hasn't gone up either. The doctors are still acting optimistic and saying that sometimes the growth is slow. Despite their assurances, we are nervous. We would certainly feel better about giving it time if we were seeing some growth, but it's hard to be patient when the stakes are so high. We are pushing towards the outer range of days for expected engraftment and it's a place we would prefer not to be.
Ezra continues to have more and more stomach distress and rashes that come and go. They think the symptoms are drug related, but the medications aren't optional, so we just have to deal. The days are really starting to drag for all of us.
Today was Mommy and Daddy's 10th anniversary. We were hoping for a gift of some neutrophils. Maybe tomorrow. So we had some cupcakes from Bubbe and Zadie and decided to celebrate next year.
Happy anniversary guys and happy fathers day Evan.
ReplyDeleteWe are still praying for Ezra here at the SoHo Synagogue. I know hashem listens to our sincere pleas; let's not forget that he can heal Ezra, only if we ask him.
ReplyDeleteHappy Anniversary Guys!
ReplyDeletePraying for some positive news, hang in there :)
Though we don't know you personally, please know that we are with you. We are davening for those cells to grow and for you to keep strong. We wish for you and hope that this week is indeed a Shavuah Tov.
ReplyDeleteHappy Anniversary and Happy Father's Day to Evan. Praying for some good news soon! Sending lots of love.
ReplyDeleteWho would have ever thought a 10th anniversary present would be neutrophils??? While things may be stalled, we all wait with you patiently for more good news! We will continue to pray to Hashem for Ezra's full recovery! Please tell him this joke...he may understand it...What's brown & sticky? Answer: A Stick! I sure hope he cracks a smile! Or even you do just reading it! We have many more distracting jokes if you like this! Happy Father's Day to Evan!!
ReplyDeleteIn our thoughts always, Happy Fathers Day Evan, and praying for Ezra and higher neutro counts
ReplyDeleteJoe C
I don't know you, but am praying for you from here in Israel, and hoping that you get some good news, soon, and that your 11th anniversary is just a joyous celebration of Ezra's successful transplant.
ReplyDeleteThis is Heather's aunt, what type of blood does Ezra need?
ReplyDeleteDenise Grissman