Sunday, September 30, 2012

Day +137: Keep on Getting Stronger

Ezra's counts have been starting to stabilize.  His platelets have started to hold without transfusions, and his neutrophils are just above the threshold where medication is required to stimulate growth.  His platelet counts are hovering around the transfuse level, but he has been on the right side of the borderline for the past couple of weeks.  The big question, however, is whose cells are growing: Ezra's old cells, the donor cells, both?  We don't know the answer to this question, but no matter the answer, it is much better and safer for him to be making his own neutrophils and platelets.  We are anxiously awaiting the next donor chimerism test, which will be in the next couple of weeks.  Please, please keep praying for donor cell growth!

Meanwhile, Ezra gets stronger each day.  When we got home from the hospital, he no longer could jump and he struggled with going up and down the stairs.  Now he is like a leapfrog and chuggs his way up and down the stairs.  And he is one happy little dude.  Even on hospital days, he skips around the examination room and sings in the halls, making everyone stop and laugh.  

We've been spending as much time as possible outside, attempting to make up for the summer that never was.  We've been finding quiet outdoor spots that don't involve playgrounds where Ezra can walk around and enjoy the fresh air.  We asked him which season he likes best and he answered "I just like every regular day."  We couldn't agree more.



9 comments:

  1. Thats wonderful guys.
    He is as adorable as ever :)

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  2. Wonderful news....continuing to pray for his full recovery!! Hag Sameach and may we all pray for Ezra's health and for Peace in Israel and the world on the heels of this Sukkot!!!

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  3. Very happy to read this. Continued progress for Ezra!
    Marge (MJC friends of Karen & Mark)

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  4. so good to hear good things - love what he said about regular days - a lesson to us all - what a special boy!! sending nmy best as always!! : ) Teisha

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  5. What wonderful news! This blog made my day. Herb and I continue to send our best wishes and prayers to this very special little boy. He is our hero!!!! Hugs to his wonderful parents too. Anne

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  6. Always thinking about you guys.
    Glad to read this posting.


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  7. great news - our special girls prays for ezra every day

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  8. Great to read this.
    David, Jerusalem

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  9. So glad to hear this good news. We are continuing those prayers for donor cell growth.

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